So, today is a big day for Areli. Today she had her first dose of her mito cocktail. To those of you who are experienced in the mito world, this is a common, everyday ritual. For those of you who don't know, a mito cocktail is composed of different vitamins and supplements used to 'treat' mitochondrial disease. If you recall there is no cure for mito, so we make efforts to try to slow the progression of the disease and increase the quality of life. Many patients can take upwards of 50 pills a day to treat their mito. Every cocktail is specifically custom to the paitent and their specific symptoms/needs. To start, Areli is only taking one supplement, Co Enzyme Q10 or CoQ10.
This little bottle, that holds the potential to slow the progression of Areli's liver disease, to improve her quality of life, to give her little body more energy so her organ systems function more productively, is EXPENSIVE!- to say the least. So a HUGE thank you to our local
Miracles for Mito Foundation, who made this available to us. There's no way to thank someone who is improving your child's health.
Be sure to check out the founders of Miracles for Mito, Maria at
Moments with Jacob and Heather at
Samantha's Mom. They are amazing woman and mother's who have done incredible things for the mito community and patients.
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